Read Me: Common Jewish Genetic Disease
Posted by Oyster on October 17, 2013
From bone pain and severe fatigue to life-threatening complications, Gaucher disease can present many challenges to patients. Gaucher disease is a rare genetic illness is caused by a deficiency in a particular enzyme in the body. It can affect people of all ethnicities but is the most common genetic disease among Ashkenazi Jews. It affects approximately 1 in 40,000 to 60,000 people worldwide.
October is Gaucher Awareness Month and an important effort is now taking place to help raise awareness and funds for a cure for Gaucher disease. The Steps Ahead of Gaucher campaign is distributing thousands of free green shoelaces to people who want to help in the effort to raise awareness. All during October when someone posts a photo wearing their green shoelaces on the Steps Ahead of Gaucher web site (www.stepsaheadofgaucher.com), Genzyme will make a donation to the National Gaucher Foundation to support research for a cure and programs to meet the needs of people affected by Gaucher disease.
We hope that you will take a step towards a cure for Gaucher by posting information on this campaign on your site. A summary of the Steps Ahead of Gaucher program is available below for you to post.
How You Can Help People Living with Gaucher Disease
Gaucher disease is a rare inherited disorder caused by a deficiency in a particular enzyme. It is estimated that approximately 1 in 40,000 to 60,000 people in the general population have Gaucher – and it is the most common genetic disease among Ashkenazi Jews. People with the disease often experience severe bone pain and fatigue along with other symptoms.
During October, you can show your support for people affected by Gaucher disease and make a great fashion statement at the same time by taking part in the Steps Ahead of Gaucher effort. It’s free and fun! The Steps Ahead of Gaucher program will be distributing free green shoelaces to thousands of people in the coming weeks.
All you have to do is get your laces and wear them during October, and you will be joining the effort to help raise awareness of Gaucher disease. Here’s how it works.
1) Visit the Steps Ahead of Gaucher web site at (www.stepsaheadofgaucher.com) to order your FREE pair of green shoelaces.
2) Wear the green laces during Gaucher Awareness Month in October.
4) Genzyme Corporation, the sponsor of the Steps Ahead of Gaucher program, will make a donation to the National Gaucher Foundation for every photo that is posted on the web site during October.
5) Get creative! Get your friends, co-workers or family involved and take a group photo with everyone wearing their laces. And remember you can use the laces to make a fashion bracelet or necklace instead – by sporting the green laces you will be helping the world to learn about Gaucher disease.
Visit http://www.stepsaheadofgaucher.com for more information.